We loved the name Mercedes. It's just so beautiful and it flows so nicely. It's also a name that has a royal sound to it; fitting for our little princess. But, we weren't quite sure... maybe Maggie or Molly?
But, Mercedes kept coming back.
September 11, 2007 was the "Boy or Girl?" ultrasound. It was at this ultrasound that we learned our little girl would endure great trials while on this earth. It was a day of happiness, but also a day where many, many unknowns were put before us. Major Heart Defects were detected, along with a few other things.
After speaking with many, many different types of doctors, the only conclusion that was come to was no conclusion at all. No one had a diagnosis; no one had a plan; no one had any idea what this beautiful little girl had in mind.
We decided that, if Mercedes was the name we would choose from our list of names, we would spell it with "Mercy" in it. Why? Because, even before her birth, we felt she was a miracle sent by God, to us. We felt we had already learned a great deal from her. And, we felt it would be a great mercy, for all of us, for her to arrive on earth and spend any amount of time with us.
Our sweet little girl, Mercydez, was born late morning on January 3, 2008, at The University Hospital in Salt Lake City, Utah. She was immediately transferred to PCMC, to the NICU, where she stayed for four months. While in the hospital, Mercydez endured several surgeries and "procedures". It seemed that these experiences only hindered her. Sometimes, for some of these precious children, medical intervention isn't the right choice. It was a difficult lesson.
In April of 2008 we decided we would bring our precious little princess home, where she could be loved without the beeping, the poking, the prodding, and the hurt. We decided, through prayer, that future interventions on her behalf would no longer be an option.
May 1st came and our little Mercydez was discharged from PCMC. It was such an exciting and scary day! We couldn't be happier to have our little Mercy with us, but we were also afraid of what would lie ahead.
Bringing our little girl home was the best decision we ever made! She proved the medical team wrong by living ten-and-a-half months longer than they gave her credit! She was able to enjoy meeting her cousins, being held and loved by all of them; she was able to attend family reunions, family pictures, singing and doing actions with her daddy; she was able to experience the 4th of July Parade in Provo; she was able to go on picnics, pet doggies, take warm, spa-like baths; have her fingernails painted; she wore sunglasses; she was able to go to county fairs; she was able to meet Santa and sit on his lap; she was able to help us start the tradition of sleeping under the Christmas Tree on Christmas Eve; she had a huge six-month birthday party at Jumpin' Jacks... pizza, cake, ice cream, and presents all included! She was able to celebrate the new year with us; She had her first birthday with us; We had her for Thanksgiving and we were able to dress her up in a beautiful dress; we watched "Signing Time" together; read childrens books; enjoyed simple therapy games and toys together.
Bringing her home also brought illness and several scary times with it. It wasn't all "fun and games", but we believe with all our hearts that each experience was a tender mercy from a very loving Father in Heaven. Mercydez endured a great deal on this earth. While complex congenital heart defects are what ultimately took her back to heaven, Mercydez was also a beautiful little girl with CHARGE Syndrome. She taught us that being different is beautiful and absolutely priceless.
Our beautiful daughter, Mercydez, returned home to Heaven on March 15th, 2009. While our experiences have been difficult, more than that, they have been a gift of happiness, of joy. We would never, ever trade our experiences with Mercy for anything. She is our greatest blessing and joy.
Children, no matter how long we have them on this earth, no matter what we do or don't experience with them, no matter their challenges, are the greatest blessing. We learned this through our tender Mercy.
16 comments:
Wow. One Year. I can't believe it. What adorable pictures, and what a great wait to celebrate Mercy's life. You guys are doing a great job bringing her with you throughout life.
I meant Way. Now wait. :)
She is absolutely beautiful! I wish I could have met her. I've been thinking about you all weekend. I hope today is wonderful for you guys! We love you!
I love that post!! You said it all perfectly. Mercy is so beautiful in every single picture. Mercy was sent to two amazing parents who, through prayer, did what was best for her. You could have kept her in the hospital and she probably would have suffered. I am so proud of you for making that decision and giving her the chance to experience life.
Happy Angel Day.
Oh you guys. My heart and arms are aching for you. We loved little Mercy so much and were just so grateful you chose to share her with us. What a princess. I love the picture of her just lovingly gazing at her daddy and I love the picture of Mercy and mommy outside the temple. You guys are amazing and we could not heart your little family more. You will be in our prayers as we know these are the harder days.
Heart hugs,
Emilu
The post above was actually Emily!!! Sorry, forgot to sign out of Mike's account!!!
What a beautiful tribute to a beautiful little girl. She's taught me so much and so have you. Thanks for sharing her with us.
I just love her! I don't think I've ever come to visit your blog and read a post about her and about your faith, and heartache and testimony, that I haven't been left with tears in my eyes and my heart aching. I love all the pictures. I love the one of You, Nic and Mercy snuggling in the bed with her looking up at her daddy and the expression you and Nic share. You guys are truly amazing. I hope that today you were able to relect on the happy memories you had with her. Thanks once again for sharing. We love you!!
She is beautiful! And she has been proud of you this past year, I know it. Thank you for sharing that post with us and for letting us feel a small glimpse of the love you had for your angel. I've been thinking of you and Nic often and will continue to pray for you both. Stay strong and know that she is with her Heavenly Father and she's being taken care of!
Lots of thoughts, prayers and hugs.
Kayla
Beautiful! Thank you for sharing that Ashley. You and Nic amaze me daily with your faith and strength! What a great way to celebrate your love for your sweet Mercy!
Ashley, what a truly beautiful piece...I've always said what an amazing writer you are, and you've proven it once again. The pictures were so beautiful of all of you. Mercydez brought so much to this world--she blessed us to no end. She will forever hold a very special place in my heart, and the hearts of my girls. We love her, and we love you. Thank you so much.
Your heartfelt and touching post has me in tears. I too know the searing pain that losing a child brings, but the peace and joy that is felt from our Heavenly Father when we need it most. Your story is beautiful and I do love reading about you. I hope you don't mind. Peace, hope, love and eternity are all we have...and every day we live is one day closer to eternity. Can't wait. Thank you for sharing your life and heart...and Mercy's too.
As I read this post I'm just tearing up. To think of what I was doing on those days. The thought of coming to visit her at PCH on Naimah's 6 mo. anni. and how it felt. How I got to visit a bit here and there. How I hung on every update without breathing to see what the next day was holding. Your phone call that early Sunday morning, how I couldn't breath or speak but just sobbed. How my instincts were screaming to just RUN to you and embrace you all. How I have the ABSOLUTE PRIVILEGE to be the smallest part of a GREAT story of this Tender yet Powerful little girl, full of heart and soul. I adore you. I adore her. I adore our friendship and understanding of our separate yet tangled lives.
I'm so touched by your words, by your constant faith and love. By your strength..you and your sweet loved ones are heroes. What better way to learn who you want to be then by learning from an Angel. Yet, who learns the most? I think we both know. And they get it DIRECTLY from the perfect source. Our Father & His Son. What a blessing it is for us. What a blessing YOU are to me.
I love you. I always will.
I don't even know what to say as I am wiping tears from my eyes. Even though I never met this beautiful little girl, I know she was sent to you guys for a reason. You and Nic are amazing people and I love you both.
God Bless.
I'm thinking about you.
♥
I ran across some pix of Mercy today...well Katie did. She was going threw the photo albums and found the nicu pix of her and mercy and Collen (spelling??) We think of mercy all the time and my children are great to remember all of you in there prayers. She has made such an impact even on those who havent had the honor of meeting her in person. You are such a blessing to us. Thankyou for your posts. The edwards.
theedwardsclanof7@yahoo.com
What a beautiful post in honor of your sweet Mercy! You should feel proud that you gave her so many happy experiences here on earth.
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